I was reading an article the other night that said over sixty percent of expecting moms who are given a prenatal diagnosis of Spina Bifida choose to terminate. I AM ABSOLUTELY ASTOUNDED. Six out of ten moms would abort because of Spina Bifida? Spina Bifida? After our routine anatomy scan we were told Korie had Trisomy 18, which is incompatible with life. It wasn’t until 3 weeks later we found out she JUST had Spina Bifida. I love to tell everyone she JUST has Spina Bifida, because compared to Trisomy 18, Spina Bifida is nothing. We have Korie. And for me that is all that matters.
So as I was thinking about that number, I was thinking why, why would anyone terminate for that? SB is absolutely compatible with life. People with Spina Bifida often attain advanced education, have careers and families of their own. I have come to the conclusion that people are uneducated. Totally and completely uneducated about Spina Bifida. And I think it starts with the OB. If they aren’t knowledgeable about Spina Bifida themselves how can they ever educate their patients? Most often the OB is providing information that is outdated and incorrect. The Spina Bifida diagnosis is usually made during the routine anatomy scan at 20 weeks. The law says you can not terminate a pregnancy after 24 weeks. This is a very small window for anyone who has been faced with a diagnosis and a decision to make. How great would it be if all the OB physicians in Fort Smith could provide their patients with up to date facts, statistics and medical treatments about Spina Bifida. What if they could tell their patients, with certainty, that everything will be okay. So how do we educate them? The only thing I can think of right now is to drag Korie into every office in Fort Smith and show them what Spina Bifida is- and hope they will give my number to any mom who may need it.
Korie’s surgery was a little over a month ago and she is still doing fantastic! I can’t imagine the ETV CPC not being successful long-term. Everything is still pointing in that direction. She went for a follow-up eye exam last week and the doctor said her eyes are PERFECT! Praise The Lord. Thank you all for the prayers. We have had a nice little vacation away from Little Rock. This is the longest we have gone without being seen there. It has been great. We go back next Thursday though for ortho and rehab, and again the following Thursday to see the neurosurgeon. I am actually looking forward to our follow-up in Boston in September. I really enjoyed our time up there after Korie was discharged from the hospital. I plan on planning a little better for the next trip!
Thank you all again for the continued support and prayers for Korie and our family. Please, if you know anyone who needs more information about Spina Bifida have them contact me. It breaks my heart that anyone would terminate any pregnancy, but especially heartbreaking that they would do so based off of inaccurate information.