18 months? There is no way my baby is 18 months. I will no longer be able to count her in months. *tear* She is now –a year and a half. Or in a few months –almost two. Time needs to slow way down. I can remember when she was a tiny baby, I couldn’t wait for her to get bigger so I could see what she was going to do. I wanted her to hurry up and roll over, hurry up and sit up, hurry up and crawl, hurry up and do this and do that. Now I just want her to stay little. She has many milestones still ahead of her and she will get there, in her own time. I just want to enjoy the moments I have with her today!
She has been doing absolutely fantastic since her last surgery. We picked up her brace for her scoliosis a few weeks ago and have already had to take it and get it readjusted. It was leaving bruises on her legs from sitting in it. She doesn’t love the brace but she isn’t fighting it. I put it on her, distract her with food, and then we’re all good! It was pretty amazing to see the curve in her spine before surgery, it looked like a big C. She has only had one x-ray since surgery, it was in the brace, and her spine was perfectly straight. This makes it a lot easier to put that ugly piece of plastic on her. I do think she was already sitting up straighter before the brace. Dr. Warf said it was possible the surgery to untether her spinal cord could help improve her scoliosis on its own. I am hoping the combination of the two will help reverse her curve. We will get new x-rays in 3 months.
Korie is scheduled to see Dr. Warf in Boston again in September. She will have an MRI and urodynamics testing before seeing Dr. Warf and the Spina Bifida team. This will be our 4th trip to Boston and her first without surgery. If all is well it could possibly be our last visit to Boston.
October will be filled with travel for Korie also. We have decided to take her to Cincinnati Children’s Hospital for their bowel management program. Almost all children with spina bifida have bowel and bladder issues. I think it is in Korie’s best interest if we address this need now and hopefully keep her bowels and bladder as healthy as possible. We will be there 10 days. Luckily it falls during Braylon and Cassidy’s fall break so we will be able to go as a family. I am so excited to get to finally go to the Creation Museum. Cassidy tells me all the time the only thing she likes about Korie having spina bifida is we get to go on vacation because of it! Love the positive attitude :)
I am trying to find Korie an “Intensive Pediatric Physical Therapy Program” to attend. The therapy usually consists of 3-4 hours a day, 5 days a week for 3 weeks. The intent is to provide her with enough repetition and strengthening to allow her to learn new motor skills faster than what traditional therapy can do. In her 18 months she has had 2 spinal surgeries, 2 brain surgeries and a hernia repair. Not to mention 3 months in full leg casts. So it is natural that she would be behind. I am hoping we will find a center that will fit her needs and help give her sweet little body a boost. Right now she goes to therapy for 45 minutes, twice a week. So basically she would be getting 30 weeks of traditional therapy in 3 weeks.
She is such a little ham. Always smiling. Talking up a storm. Her favorite word is bite. She loves to go “dide” (outside). She waves at everyone she sees and tells them “aye” (hi). The Lord has truly blessed us with this little red head. Happy 18 month birthday to my Baby K!